About Us
Our oldest, Sienna, was diagnosed with Cystic Fibrosis shortly after birth. Cystic Fibrosis is a chronic illness that affects the lungs and GI system of roughly 70,000 individuals worldwide. There is no cure - but we are close to one!
I started this blog as a way to share updates and news on Sienna's health with our family and friends, but realized quickly it was also a great outlet for my thoughts and avenue for raising awareness on Cystic Fibrosis. Now that we are a few years into our journey, and relatively "comfortable" with our lifestyle, I hope this space grows to show challenges and triumphs of a family just doing our thing and making the most out of our time here.
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